Today's Appointment

We did not get the news we hoped for, but I guess I'm ok with it. Dr. Karl doesn't usually remove G-tubes in the fall or winter because that's when children are the sickest. He tends to be an overly cautious man, but I can respect him for it. He wants to leave the tube in for two reasons. One, if Jayden is sick and refusing to eat, we can still get fluids into him through the tube. Secondly, Jayden's weight to length is on a downward trend on the curve charts. Jayden used to be in the 50th percentile, now he is in the 10th. He gained weight, but a very small amount. The feeding team claims he's getting enough caloric intake through what he takes daily, but would like to see him take in more calories through food instead of "milk". We will also start transitioning him from Pediasure all of the time to some whole milk once a day. We need to continue to offer him a variety of foods, not just the foods we know he will eat. I feel we do this already. When we make supper, we don't make Jayden special foods. He's served what we eat. We're hoping Jayden continues to gain weight, otherwise we will have to resort back to the feeding pump at night for additional calories.

They also said he's delayed in speech and recommend speech therapy. He already receives Occupational Therapy, but will start receiving Speech too.

We will continue to take him to the doctor once a month for the next 4 months getting a weight check. Around February or March, we will make see Dr. Karl again, do a repeat Upper GI and then talk about removing the button, assuming he's gained adequate weight.